Articles by Month: January 2019
When parents of children with down syndrome are referred to Fort Myers ABA therapy, their initial response is often, “Wait, I thought that was for autism?”
It is. But it’s also proven extremely effective when incorporated into the treatment plans of kids with other special needs – especially down syndrome.
Certain challenging behaviors common among children with down syndrome are very similar to those displayed by children with autism. These behaviors, left untreated, can impede progress with academics, socialization and independence – blocking their path to realizing their full potential.
Good news for Florida parents of children with down syndrome: ABA therapy coverage is mandated for them, this month marking two years since the legislature agreed this, along with early intervention speech therapy, occupational therapy and physical therapy should be guaranteed for children diagnosed with down syndrome.
The Florida mandate – House Bill 221, codified in and amendment to F.S. 627.6686 – helps families and individuals with down syndrome access effective, science-based therapy without having to mount a massive fight with your health insurer.
Many of our FOCUS pediatric speech therapists were initially drawn to this field in part because we share a love of language. Sure, some of us are self-professed grammar nerds and logophiles, but in working with kids with special needs, we’ve seen that the real beauty of language is the way it facilitates communication and sparks connections. That’s a universal truth of language, but in helping children overcome speech delays, receptive language deficits or phonological disorders, we’ve come to appreciate language on a whole new level.
In stacking the developmental blocks for communication, social interaction and connection, one of the best (and easiest) things any parent can do: Read bedtime stories. This is especially true for kids with special needs, for whom language doesn’t come easily. Frequent storybook sessions help children learn new words, recognize the importance and subtle differences of tone, inflection and pitch, explore complex feelings and confusing interactions in a safe space and better grasp the intricacies of the world around them.
Most children – even if some have shorter attention spans – love bedtime stories. (Although story time can be anytime, bedtime is ideal – especially if you’re child is antsy – because you’re more likely to have a captive audience just before bed, as opposed to morning or mid-day, unless they still nap. Plus, many parents who work find it difficult to nail down a story time routine in the morning rush or simply can’t swing it on their lunch hour.) Making stories-and-snuggles part of the nightly groove works best for most, gives kids something to look forward to and a chance to wind down. And, as most parents of kids with special needs know, having a routine is a lifeline.
Even if your child doesn’t seem to understand the stories, follow along or pay much attention, research shows they still glean advantages from the one-on-one time, routine and mental exercise. Most speech, ABA and occupational therapists would argue children who struggle with expressive and receptive language skills may even need those bedtime stories more than most.
“Tummy time” is a cute little phrase referencing an essential infant exercise that our pediatric occupational therapists know so many parents come to dread. Per the American Academy of Pediatrics, tummy time should start when your child is a newborn, placing your child (always supervised) on their tummies. This begins with short, 2-to-3-minute increments three times a day and eventually extending it for longer periods of 30-to-40-minutes as they get older.
The whole concept of “tummy time” started back in the early 1990s, when the AAP first began recommending that babies be put “back to sleep,” placed on their backs during naps and at night to reduce the incidence rate of sudden infant death syndrome (SIDS) – which has really worked! Researchers around the globe report SIDS deaths have decreased 40 to 50 percent since the Back to Sleep campaign began.
The problem is this has been accompanied by a rise in other problems physicians and pediatric occupational therapists believe is related, most commonly plagiocephaly. In layman’s terms, this refers to when infants develop a flat spot on the back of their skull. The American Academy of Physical Therapists reports an “alarming rise” of skull deformation, with one analysis published in the Cleft Palate-Craniofacial Journal finding it rose approximately 600 percent from an incidence rate of 5 percent prior to 1992 (when the “Back to Sleep” campaign began) until now. “Back to Sleep” is almost certainly a driving factor, but also the increasingly inordinate amount of time infants spend in car seats, strollers, etc.
Most any Fort Myers speech-language pathologist will tell you one of the first questions families of young children ask when inquiring whether certain missed milestones are cause for concern: “What if my child doesn’t respond to his name?”
It’s impossible to give a blanket answer because every child develops at a uniquely individual pace. (It’s also physicians – usually specialists – responsible for the actual diagnosis.) That said, a long-time speech-language pathologist will likely agree: If your child doesn’t respond to his name by the time they turn 1-year-old, it could indicate a developmental delay that requires action. You’ll want to alert your child’s primary care physician and discuss whether the concern warrants referrals for closer evaluation by specialists.
Responding to one’s name is a critical building block of functional communication. This wouldn’t be just a single instance when he couldn’t tear his attention from a riveting show or “selective hearing” in a moment of intense fun. This would be an issue that is consistent and noticeable (at least by you).
What Child’s Failure to Respond to Name Could Mean